tag:blogger.com,1999:blog-4560607747499642804.post2811357253943367141..comments2023-06-10T20:21:47.408+10:00Comments on Rollercoaster Parenting: Conflict of InterestHeike Fabighttp://www.blogger.com/profile/06856001856348587649noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4560607747499642804.post-25829137061229722072010-06-06T22:36:49.333+10:002010-06-06T22:36:49.333+10:00Heike, wonderful thought provoking post that i am ...Heike, wonderful thought provoking post that i am sure I will read over and over again.<br />That whole wanting walk business also confuses me as when Cooper had a fairy to blow in the garden the other day he said " I wish for a really big gun! and some barbies for his sister" lol Bron xoSmithsholidayroadhttps://www.blogger.com/profile/03614441021886602077noreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-26597529945891248502010-06-01T10:26:21.729+10:002010-06-01T10:26:21.729+10:00Katie
I wrote to "them" at the time of t...Katie<br />I wrote to "them" at the time of that ad and said surely that isn't what that little girl really wants, I queried (with honesty) if any kid wants to 'walk' like others - they might like to run, jump, skip - but walk - it's so boring... so 'lame' (pun intended). They assured me they were her words - I responded saying how sad I felt for that little girl that she had never been taught to look beyond the shallowness of that 'wish' and is clearly surrounded by those that make her feel like it is important. I am sad she had never been taught to 'dream big' so she might 'fly' rather than walk like the others. I wish she could listen to Amy Mullins and learn that "beige is boring" and set a new path for herself.Gina @ Inky Ed!http://inkyed.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-71529648400455001842010-05-27T21:12:52.927+10:002010-05-27T21:12:52.927+10:00Yep Katie, the very same Foundation. Such a track ...Yep Katie, the very same Foundation. Such a track record of sensitivity eh? Boy oh boy, where to start?Heike Fabighttps://www.blogger.com/profile/06856001856348587649noreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-47422334184777585462010-05-26T23:12:56.113+10:002010-05-26T23:12:56.113+10:00Oh Oh - The CP Foundation is the one that have the...Oh Oh - The CP Foundation is the one that have the scripted advert featuring several small children all saying what they want most: a puppy, a pony, that kind of thing. And then they get to a girl with CP who says, "I want to walk like the others" and wobbles off into the distance. I *think* it's the same foundation, I recall it being Australian.<br /><br />Anyhow, I stumbled (ha - pun intended) across that advert on YouTube and was horrified. Apart from anything else, as someone who has direct experience of being a small girl with CP, I'm pretty sure she gets frustrated with having CP sometimes but what she REALLY wants is a puppy or a pony, like those others...<br /><br />... Totally horrified that the Foundation seemed to suggest that it was entirely right that she should be so full of self-loathing at such a young age - for surely, if you want to walk 'like the others', self-loathing is implied - and that a cure is an essential, rather than, y'know, highlighting the importance o helping young CPers to develop self-confidence and independent living skills so they can get on with their lives. <br /><br />Genuinely, I'm not easily offended by such things, but that advert really really upset me.<br /><br />So, from limited experience, I am not remotely impressed by the CP Foundation and the message it projects, and would not want to attend any organisation entangled with its schemes.<br /><br />More power to your elbow!<br /><br />xKatiehttps://www.blogger.com/profile/14255575000862197175noreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-2305573551287512842010-05-12T00:48:46.208+10:002010-05-12T00:48:46.208+10:00Great post.
No conflict of interest... yeah right...Great post.<br /><br />No conflict of interest... yeah right.<br /><br />TSC have conned the community for years - they are the masters of using fear and pity to appear as though there is a genuine and meaningful role for them in society. I don't believe there is - if TSC didn't exist would anyone notice... or would we simply notice there was one less "hoop" to jump through?Gina & Machttp://inkyed.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-21967190752612343402010-05-10T20:45:56.138+10:002010-05-10T20:45:56.138+10:00Oh a life without CP - a life I have always dreame...Oh a life without CP - a life I have always dreamed about.<br /><br />You are right though. A world where disabities were 100% accepted would be better.<br /><br />You write so well. Good on you for your passionate opinions and well written thoughts.Erinhttps://www.blogger.com/profile/11377293194507640289noreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-9615617748212402322010-05-10T00:58:32.317+10:002010-05-10T00:58:32.317+10:00I agree this is a great post Heike, and I agree wi...I agree this is a great post Heike, and I agree with your feelings about a conflict of interest. <br /><br />I'm in Qld so we don't get services from TSC (oh please , they HAVE to change the full name!), but am interested in knowing how the funding is split between research into finding a cure/pre-birth testing, and providing services for their 'clients'. <br /><br />I do hope the balance weighs more heavily on current service provision...<br /><br />Cheers<br />LizLizhttp://www.whattheheckofthat.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-19227410388597866602010-05-09T23:56:13.570+10:002010-05-09T23:56:13.570+10:00Thanks Heike, keep sniffing, keep provoking though...Thanks Heike, keep sniffing, keep provoking thought, change in an organisation like TSC can only come from the grassroots- they can't even realistically consider changing their ghastly name! Chrisbluffskahttps://www.blogger.com/profile/08309599257633453097noreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-36643340119467049212010-05-07T19:33:01.003+10:002010-05-07T19:33:01.003+10:00A great post Heike.
I was once talking to a "...A great post Heike.<br /><br />I was once talking to a "sporting" hero who was lending his spare time to a charity that I was also helping out. He asked me if the charity gave money to research to prevent CP? The question took me by surprise and I answered "No", before going on to say that there wasn't a cure for CP. I really hated the question and it really made me feel very uncomfortable. As if his support relied upon CP being banished by these good drs that save lives. I know that you can probably sense the sarcasm dripping from that comment.<br /><br />If I had have known when I was pregnant that I was going to have a child with CP, would I have gone through with it. I can now answer the question with a million times yes. Fortunately, I'm not the saint I appear to be as we were always told that the chances of Moo having a disability were high and we still continued with the pregnancy. He just ended up with the disability that no-one predicted;-)<br /><br />Again, great post. And I don't think that you will get into trouble for your thoughts because they are supported by this parent sitting right here.<br /><br />JJacquihttp://www.terriblepalsy.comnoreply@blogger.comtag:blogger.com,1999:blog-4560607747499642804.post-44294872688277547802010-05-06T23:36:05.314+10:002010-05-06T23:36:05.314+10:00Excellent post Heike. One you've obviously pu...Excellent post Heike. One you've obviously put a lot of thought and research into.<br /><br />I wouldn't worry too much about the trouble you might get into - what are they gonna do, withold their paltry, next-to-nothing "service"??<br /><br />I'm really beginning to wonder whether we actually see meaningful reform of disability services in Australia during our lifetime...<br /><br />Take care, and enjoy your surprise on Sunday!<br /><br />Susan<br /><br />PS: Does BooBoo use her Hart Walker much? Ours is gathering dust in the corner of the playroom room, untouched for months...Susan, Mum to Mollynoreply@blogger.com