What is it about?

The rollercoaster adventures of parenting three kids, dealing with disability and mental health - and discussing disability discrimination and how to tackle it.

Wednesday, 25 February 2009

Big Brother

Some little girls are very lucky. They have a big brother.


When mamma gives the little girl a shower, a big brother can walk up and say "Mum, can I do it?" And then the mamma hands the hose to the big brother, and he washes his little sister's hair. And back. And ears.



And that's heaps of fun!

Monday, 23 February 2009

Things to do with a girlfriend

Beaver says:

- Mum, the boys in my class say girls are yuk and they don't want a girlfriend.
- Hmm, is that right?
- The boys say that they don't want a girlfriend, but I tell them that they're wrong and they will change their minds when they get older.
- Sure thing!
- Mum, when you have a girlfriend, you kiss them, don't you?
- Yeah.
- But mum, when you have a girlfriend, you do much more than just kissing, don't you?

I brace myself thinking "oh boy, here we go." I keep a straight face and a neutral voice and reply:

- Yeah.

To which Beaver responds:

- Yeah. You also go shopping together, and all that. You do the laundry, and get petrol for the car, don't you mum?
- Sure thing Beaver.

Phew!

Tuesday, 10 February 2009

Arranounbai

Yes, you are all waiting to hear how it went. So here goes...

Unlike with Beaver, we chose to send Boo Boo to a special school. The local preschool was quite happy to take her, but it would be at least another year until they had a spot for her. Also, they were rather nervous about her power chair. What if she drives over some other kids' toes and breaks one? They would have to get a full time aide for her, and that costs loads of extra money and in my eyes separates Boo Boo from the other kids, who don't have an adult tailing them the whole time. Arranounbai Special School for Children with Physical Disabilities and Medical Conditions is a purpose built school, fully wheelchair accessible, and with staff trained for various medical emergencies (the school has its own defibrillator, will you believe it) and used to a wide range of disabilities and special needs. Not only that, their preschool program runs a reverse integration which means that they also accept "normal" kids. The idea is that the disabled kids learn from the others and in turn they learn to accept disability as normal. Pretty good eh? Staff are happy for Boo Boo to bring her power chair, and the small class sizes and high teacher-staff ratios mean that Boo Boo does not need an aide, but also won't get lost in the crowd. And as luck has it, there are twins in her year (a boy in her class and his sister in the other class) who will go on to Primary School with her. How good is that?

Anyway, Boo Boo was dead keen to go. She was very disappointed to go a week later (we had to wait until she was no longer contagious with the whooping cough) and very excited on the morning. She knew "mamma would go bye bye", and then she would play until "mamma would come hi". That was ok - until the moment that mamma did indeed go "bye bye" and little Boo Boo dissolved into bitter tears. I just walked out without looking back and drove straight home. Boy, I'd forgotten how hard this is! The whole day I was on edge - and I kept hearing her in the babyphone, or so my brain would have me believe. When I went to pick her up that afternoon, I could hear her at the end of the corridor. She had driven her wheelchair up to the tray with red paint, and was alternating between crying and wanting to have a go with the paint. The relief on her face when she saw me was both sweet and painful at the same time. Staff told me she had only cried half the day and had some moments of fun - and the laptop with pictures of the day confirmed that! They were very impressed with her ability to communicate and thought she seemed like a bright little girl. We went home, utterly exhausted. She had red rings around her eyes from crying, and I was a nervous wreck.

The next day, hubby had taken a day off. The plan was for us to go for a bush walk, then have a nice lunch and pick up the kids together. Well, best laid plans...

The boys were not too happy at school drop-off. Beaver simply did not want to go. There have been some minor changes recently, and he doesn't like that. Also, the thought that Daddy had a day off did not sit well with him. Possum has come down with a cold, and was trying to convince us he had to stay at home - until he saw his friends, and off he ran. At preschool, Boo Boo wanted to show Daddy her room, and the sandpit and the water play. And then when we left, she burst into tears again of course!

Hubby and I had just got to the beach for breakfast when the phone rang. School. A tearful Beaver on the phone, and a teacher who did not know what else to do with him. So back in the car we went to pick up the boy. Hubby spend the rest of the day with him, tidying up the house and doing some shopping while I painted the gutters above the deck until it was time to pick up Boo Boo and Possum. Not quite the day off we had in mind!

Possum had a fine day at school, and really, so had Boo Boo. There had been a few tears, but all in all she played well that day. At one point she played in the toy kitchen making teas with James and Patrick and according to her teachers, she thoroughly enjoyed the attention of the two boys. That bodes well for the future when she hits her teens!

I am sure there will be tears again this week. But I am also sure that in a few weeks time, she'll be happy to go, happy to wave me bye bye.

Wednesday, 4 February 2009

Tomorrow

Tomorrow is a big day for little Boo Boo.
Tomorrow she's off to preschool, yoo hooo.
Separation fears.
I expect a few tears.
From Boo Boo - but possibly Mamma too ...

Tuesday, 3 February 2009

Sunday, 1 February 2009

Summer Pictures

Going to the beach.
Running with the waves.

Building sandcastles.

Seeing friends...

Floating ...
Blowing bubbles in the pool
And eating ice cream.

Summer!